Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria
Corresponding Author
Jameson K. Hirsch
Department of Psychology, East Tennessee State University, Johnson City, Tennessee, USA
Correspondence
Jameson K. Hirsch, Department of Psychology, 420 Rogers Stout Hall, East Tennessee State University, Johnson City, TN 37614, USA.
Email: hirsch@etsu.edu
Search for more papers by this authorLoren Toussaint
Department of Psychology, Luther College, Decorah, Iowa, USA
Search for more papers by this authorNiko Kohls
Department of Integrative Health Promotion, University of Applied Science, Coburg, Germany
Search for more papers by this authorChristian Hanshans
Department of Applied Sciences and Mechatronics, University of Applied Science, Munich, Germany
Search for more papers by this authorMiguel Vallejo
Department of Psychology, National Distance Education University, Madrid, Spain
Search for more papers by this authorJavier Rivera
Hospital General Universitario Gregorio Marañón, Madrid, Spain
Search for more papers by this authorFuschia Sirois
Department of Psychology, University of Sheffield, Sheffield, UK
Search for more papers by this authorMartin Gaisberger
Institute of Physiology and Pathophysiology, Paracelsus Medical University, Salzburg, Austria
Search for more papers by this authorMwidimi Ndosi
Department of Nursing and Midwifery, University of the West of England, Bristol, UK
Search for more papers by this authorCorresponding Author
Jameson K. Hirsch
Department of Psychology, East Tennessee State University, Johnson City, Tennessee, USA
Correspondence
Jameson K. Hirsch, Department of Psychology, 420 Rogers Stout Hall, East Tennessee State University, Johnson City, TN 37614, USA.
Email: hirsch@etsu.edu
Search for more papers by this authorLoren Toussaint
Department of Psychology, Luther College, Decorah, Iowa, USA
Search for more papers by this authorNiko Kohls
Department of Integrative Health Promotion, University of Applied Science, Coburg, Germany
Search for more papers by this authorChristian Hanshans
Department of Applied Sciences and Mechatronics, University of Applied Science, Munich, Germany
Search for more papers by this authorMiguel Vallejo
Department of Psychology, National Distance Education University, Madrid, Spain
Search for more papers by this authorJavier Rivera
Hospital General Universitario Gregorio Marañón, Madrid, Spain
Search for more papers by this authorFuschia Sirois
Department of Psychology, University of Sheffield, Sheffield, UK
Search for more papers by this authorMartin Gaisberger
Institute of Physiology and Pathophysiology, Paracelsus Medical University, Salzburg, Austria
Search for more papers by this authorMwidimi Ndosi
Department of Nursing and Midwifery, University of the West of England, Bristol, UK
Search for more papers by this authorAbstract
Introduction
Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted groups to provide tailored educational interventions. The aim of our study was to assess educational needs of a large cohort of patients with different rheumatic and musculoskeletal diseases attending a health facility in Austria.
Methods
We assessed educational needs, via an online survey of patients with fibromyalgia (FMS), rheumatoid arthritis (RA), and ankylosing spondylitis (AS) recruited from an Austrian health-care facility, using the Austrian version of the Educational Needs Assessment Tool (OENAT).
Results
For our sample of 603 patients, AS (62%), RA (15%), and FMS (24%), there were no educational need differences for the domains of movements, disease process, and self-help measures. Patients with FMS had less need for pain management education and greater need for education about feelings, than other disease groups. Patients with RA had a greater need for education related to treatments than other groups, and patients with AS had a greater need for treatment education than patients with FMS. Patients with AS reported greater need for support system education than other patient groups.
Conclusion
Educational needs vary by disease groups, suggesting that health-care professionals should assess disease-specific needs for education to provide optimal assistance in disease management for patients.
CONFLICT OF INTEREST
There are no conflicts of interest to report.
REFERENCES
- Armentor, J. L. (2017). Living with a contested, stigmatized illness: Experiences of managing relationships among women with fibromyalgia. Qualitative Health Research, 27(4), 462–473. https://doi.org/10.1177/1049732315620160
- Ataoğlu, S., Ankaralı, H., Ankaralı, S., Ataoğlu, B. B., & Ölmez, S. B. (2018). Quality of life in fibromyalgia, osteoarthritis and rheumatoid arthritis patients: Comparison of different scales. Egyptian Rheumatologist, 40(3), 203–208. https://doi.org/10.1016/j.ejr.2017.09.007
- Birtane, M., Uzunca, K., Taştekin, N., & Tuna, H. (2007). The evaluation of quality of life in fibromyalgia syndrome: A comparison with rheumatoid arthritis by using SF-36 Health Survey. Clinical Rheumatology, 26(5), 679–684. https://doi.org/10.1007/s10067-006-0359-2
- Blyth, F. M., Briggs, A. M., Schneider, C. H., Hoy, D. G., & March, L. M. (2019). The global burden of musculoskeletal pain—Where to from here? American Journal of Public Health, 109(1), 35–40. https://doi.org/10.2105/AJPH.2018.304747
- Branco, J. C., Rodrigues, A. M., Gouveia, N., Eusébio, M., Ramiro, S., Machado, P. M., … Canhão, H. (2016). Prevalence of rheumatic and musculoskeletal diseases and their impact on health-related quality of life, physical function and mental health in Portugal: Results from EpiReumaPt—A national health survey. RMD Open, 2(1), 1-12, e000166. https://doi.org/10.1136/rmdopen-2015-000166
- Bucourt, E., Martaillé, V., Mulleman, D., Goupille, P., Joncker-Vannier, I., Huttenberger, B., … Courtois, R. (2017). Comparison of the Big Five personality traits in fibromyalgia and other rheumatic diseases. Joint, Bone, Spine, 84(2), 203–207. https://doi.org/10.1016/j.jbspin.2016.03.006
- Cañizares, M., Power, J. D., Perruccio, A. V., & Badley, E. M. (2008). Association of regional racial/cultural context and socioeconomic status with arthritis in the population: A multilevel analysis. Arthritis and Rheumatism, 59(3), 399–407. https://doi.org/10.1002/art.23316
- Cimmino, M. A., Ferrone, C., & Cutolo, M. (2011). Epidemiology of chronic musculoskeletal pain. Best Practice & Research. Clinical Rheumatology, 25, 173–183. https://doi.org/10.1016/j.berh.2010.01.012
- Colmenares-Roa, T., Huerta-Sil, G., Infante-Castañeda, C., Lino-Pérez, L., Alvarez-Hernández, E., & Peláez-Ballestas, I. (2016). Doctor–patient relationship between individuals with fibromyalgia and rheumatologists in public and private health care in Mexico. Qualitative Health Research, 26(12), 1674–1688. https://doi.org/10.1177/1049732315588742
- Dorner, T. E., & Stein, K. V. (2013). Prevalence and status quo of osteoarthritis in Austria. Analysis of epidemiological and social determinants of health in a representative cross-sectional survey. Wiener Medizinische Wochenschrift, 163(9–10), 206–211. https://doi.org/10.1007/s10354-013-0174-8
- Drǎgoi, R. G., Ndosi, M., Sadlonova, M., Hill, J., Duer, M., Graninger, W., … Stamm, T. A. (2013). Patient education, disease activity and physical function: Can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis. Arthritis Research and Therapy, 15(5), 1-8, R156. https://doi.org/10.1186/ar4339
- Haglund, E., Bremander, A., Bergman, S., & Larsson, I. (2017). Educational needs in patients with spondyloarthritis in Sweden—A mixed-methods study. BMC Musculoskeletal Disorders, 18(1), 1-9, 335. https://doi.org/10.1186/s12891-017-1689-8
- Hardware, B., Johnson, D., Hale, C., Ndosi, M., & Adebajo, A. (2015). Patients and nursing staff views of using the education needs assessment tool in rheumatology clinics: A qualitative study. Journal of Clinical Nursing, 24(7–8), 1048–1058. https://doi.org/10.1111/jocn.12733
- Hardware, B., Lacey, E. A., & Shewan, J. (2004). Towards the development of a tool to assess educational needs in patients with arthritis. Clinical Effectiveness in Nursing, 8(2), 111–117. https://doi.org/10.1016/j.cein.2004.06.001
10.1016/j.cein.2004.06.001 Google Scholar
- Hellou, R., Häuser, W., Brenner, I., Buskila, D., Jacob, G., Elkayam, O., … Ablin, J. N. (2017). Self-reported childhood maltreatment and traumatic events among Israeli patients suffering from fibromyalgia and rheumatoid arthritis. In Pain Research and Management (Vol. 2017). Hindawi Limited. https://doi.org/10.1155/2017/3865249
- Lumley, M. A., Schubiner, H., Lockhart, N. A., Kidwell, K. M., Harte, S. E., Clauw, D. J., & Williams, D. A. (2017). Emotional awareness and expression therapy, cognitive behavioral therapy, and education for fibromyalgia: A cluster-randomized controlled trial. Pain, 158(12), 2354–2363. https://doi.org/10.1097/j.pain.0000000000001036
- Medina, L. D., Hirshberg, L., Taylor, M. J., Gilbert, P. E., & Heaton, R. K. (2019). Rates of neuropsychological dysfunction in fibromyalgia and rheumatoid arthritis. JCR: Journal of Clinical Rheumatology, 25(6), 252–257. https://doi.org/10.1097/RHU.0000000000000837
10.1097/RHU.0000000000000837 Google Scholar
- Meier, U. (2006). A note on the power of Fisher's least significant difference procedure. Pharmaceutical Statistics, 5(4), 253–263. https://doi.org/10.1002/pst.210
- Ndosi, M., & Adebajo, A. (2015, September 18). Patient education in rheumatoid arthritis: Is the needs-based approach the way forward? Clinical RheumatologySpringer-Verlag London Ltd, 34, 1827–1829. https://doi.org/10.1007/s10067-015-3063-2
- Ndosi, M., Bremander, A., Hamnes, B., Horton, M., Kukkurainen, M. L., Machado, P., … Hill, J. (2014). Validation of the educational needs assessment tool as a generic instrument for rheumatic diseases in seven European countries. Annals of the Rheumatic Diseases, 73(12), 2122–2129. https://doi.org/10.1136/annrheumdis-2013-203461
- Ndosi, M., Tennant, A., Bergsten, U., Kukkurainen, M. L., Machado, P., De La Torre-Aboki, J., … Hill, J. (2011). Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries. BMC Musculoskeletal Disorders, 12, 1–10. https://doi.org/10.1186/1471-2474-12-110
- Packham, J. C., & Hall, M. A. (2002). Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Social function, relationships and sexual activity. Rheumatology, 41(12), 1440–1443. https://doi.org/10.1093/rheumatology/41.12.1440
- Pérez, S., Santa Cruz, M., Sosa, J., Kohan, P., Medina, M., Klajn, D., … Maldonado Ficco, H. (2019). Evaluation of the educational needs in Argentine patients with rheumatoid arthritis using the SpENAT questionnaire. Reumatología Clínica(English Edition). https://doi.org/10.1016/j.reumae.2018.09.014
- Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., … Hewlett, S. (2008). ‘It's quite hard to grasp the enormity of it’: Perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care, 6(3), 155–167. https://doi.org/10.1002/msc.132
- Ruiz-Montero, P. J., Van Wilgen, C. P., Segura-Jiménez, V., Carbonell-Baeza, A., & Delgado-Fernández, M. (2015). Illness perception and fibromyalgia impact on female patients from Spain and the Netherlands: Do cultural differences exist? Rheumatology International, 35(12), 1985–1993. https://doi.org/10.1007/s00296-015-3281-6
- Sierakowska, M., Sierakowski, S., Sierakowska, J., Horton, M., & Ndosi, M. (2015). Developing the Polish Educational Needs Assessment Tool (Pol-ENAT) in rheumatoid arthritis and systemic sclerosis: A cross-cultural validation study using Rasch analysis. Quality of Life Research, 24(3), 721–733. https://doi.org/10.1007/s11136-014-0805-6
- Tander, B., Cengiz, K., Alayli, G., Ilhanli, I., Canbaz, S., & Canturk, F. (2008). A comparative evaluation of health related quality of life and depression in patients with fibromyalgia syndrome and rheumatoid arthritis. Rheumatology International, 28(9), 859–865. https://doi.org/10.1007/s00296-008-0551-6
- Ulus, Y., Akyol, Y., Tander, B., Durmus, D., Bilgici, A., & Kuru, O. (2011). Sleep quality in fibromyalgia and rheumatoid arthritis: Associations with pain, fatigue, depression, and disease activity. Clinical and Experimental Rheumatology, 29(6 SUPPL. 69), 92-96, S92.
- Van Der Heijde, D., Daikh, D. I., Betteridge, N., Burmester, G. R., Hassett, A. L., Matteson, E. L., … Lakhanpal, S. (2018). Common language description of the term rheumatic and musculoskeletal diseases (RMDs) for use in communication with the lay public, healthcare providers and other stakeholders endorsed by the European League Against Rheumatism (EULAR) and the American College of Rheumatology (ACR). Annals of the Rheumatic Diseases, 77(6), 829–832. https://doi.org/10.1136/annrheumdis-2017-212565
- Van Echteld, I., Cieza, A., Boonen, A., Stucki, G., Zochling, J., Braun, J., & Van Der Heijde, D. (2006). Identification of the most common problems by patients with ankylosing spondylitis using the International Classification of Functioning, Disability and Health. Journal of Rheumatology, 33(12), 2475–2483.
- Voshaar, M. J. H., Nota, I., Van De Laar, M. A. F. J., & Van Den Bemt, B. J. F. (2015). Patient-centred care in established rheumatoid arthritis. Best Practice & Research. Clinical RheumatologyBailliere Tindall Ltd, 29, 643–663. https://doi.org/10.1016/j.berh.2015.09.007
- Ward, M. M., Reveille, J. D., Learch, T. J., Davis, J. C., & Weisman, M. H. (2008). Impact of ankylosing spondylitis on work and family life: Comparisons with the US population. Arthritis and Rheumatism, 59(4), 497–503. https://doi.org/10.1002/art.23523
- Yazici, Y., Kautiainen, H., & Sokka, T. (2007). Differences in clinical status measures in different ethnic/racial groups with early rheumatoid arthritis: Implications for interpretation of clinical trial data. The Journal of Rheumatology, 34(2), 311–315. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/17304656
- Zangi, H. A., Ndosi, M., Adams, J., Andersen, L., Bode, C., Boström, C., … Van Tubergen, A. (2015). EULAR recommendations for patient education for people with inflammatory arthritis. Annals of the Rheumatic Diseases, 74(6), 954–962. https://doi.org/10.1136/annrheumdis-2014-206807