The Formation of the Cypriot Thalassaemia Prevention System: The ‘Slow’ Assembly and Construction of a Problem (1944-1984)
Corresponding Author
Theodoros Kyriakides
Theodoros Kyriakides is a Postdoctoral Fellow at the Department of Social and Political Sciences, University of Cyprus. His PhD research explored the history and politics of thalassaemia in Cyprus. His is now engaged in a new project on the historical and modern relations between magic and religion in Cyprus.
Search for more papers by this authorCorresponding Author
Theodoros Kyriakides
Theodoros Kyriakides is a Postdoctoral Fellow at the Department of Social and Political Sciences, University of Cyprus. His PhD research explored the history and politics of thalassaemia in Cyprus. His is now engaged in a new project on the historical and modern relations between magic and religion in Cyprus.
Search for more papers by this authorAbstract
Thalassaemia is one of the most widespread recessive blood disorders in the world. This article focuses the historical trajectory by which the Cypriot thalassaemia prevention system, one of the most successful of its kind, achieved full prevention rate. By tracing the history of decision-making of medical practitioners central to the construction of the prevention system, my objective is to further elucidate underlying logics of policy-making and health governance which can account for its success. As I suggest, the Cypriot thalassaemia prevention system achieved a full prevention rate because it operated according to a ‘slow’ modality of problematisation and decision-making, which accounted for the cultural, social and ethical dimensions specific to the Cypriot public.
REFERENCES
- Adams, V., Burke, N. J., & Whitmarsh, I. (2014). Slow research: Thoughts for a movement in Global Health. Medical Anthropology, 33(3), 179–197.
- Aggarwal, R., Anupam, P., & Aggarwal, M. (2014). Thalassaemia: An overview. Journal of the Scientific Society, 41(1), 3–6.
10.4103/0974-5009.126696 Google Scholar
- Angastiniotis, M., Kyriakidou, S., & Hadjiminas, M. (1986). How thalassaemia was controlled in Cyprus. World Health Forum, 7, 291–297.
- Armstrong, N., & Eborall, H. (2012). The sociology of medical screening: past, present and future. Sociology of Health & Illness, 34(2), 161–176.
- Atkin, K., Ahmad, W. I. U., & Anionwu, E. (1998). Screening and counselling for sickle cell disorders and thalassaemia: The experience of parents and health professionals. Social Science and Medicine, 47(11), 1639–1651.
- Banton, A. (1951). A genetic study of mediterranean anaemia in Cyprus. American Journal of Human Genetics, 3(1), 47–64.
- Bate, C. M. (1975). Thalassaemia in Cyprus. Proceedings of the Royal Society of Medicine, 68(8), 514–516.
- Beck, S., & Niewöhner, J. (2009). Localizing genetic testing and screening in Cyprus and Germany: Contingencies, continuities, ordering effects and biocultural intimacy. In P. Atkinson, P. Glasner and M. Lock (eds) Handbook of Genetics and Society: Mapping the New Genomic Era. London: Routledge. pp. 76–93.
- Biehl, J. (2008). Will to live: AIDS therapies and the politics of survival. Princeton: Princeton University Press.
- Book, P. (1980). Thalassemia: An anthropological study of 86 patients and their families in Cyprus. PhD Thesis. University of Connecticut.
- Callon, M. (1986). Some elements of a sociology of translation: Domestication of the scallops and the fishermen in St Brieuc bay. In J. Law (ed) Power, Action and Belief: A New Sociology of Knowledge? London: Routledge. pp. 196–223.
- Cao, A., Rosatelli, M.C., Monni, G., & Alanello, R. (2002). Screening of thalassemia: A model of success. Obstetrics and Gynecology Clinics of North America, 29, 305–328.
- Clegg, J., & Weatherall, D. (1999). Thalassemia and malaria: New insights into an old problem. Proceedings of the Association of American Physicians, 111(4), 278–282.
- Cowan, R. (2008). Heredity and hope: The case for genetic screening. Cambridge, Massachusetts: Harvard University Press.
10.4159/9780674029927 Google Scholar
- Deleuze G., & Guattari, F. (1987). A Thousand Plateaus: Capitalism and Schizophrenia, translated by Brian Massumi. Minneapolis, University of Minnesota Press.
- Dyson, S., & Atkins, K. (2011). Sickle cell and thalassaemia: Global health issues coming of age. Ethnicity and Health, 16(4-5), 299–311.
- Fawdry, A. (1944). Erythroblastic anaemia of childhood (Cooley’s Anaemia) in Cyprus. The Lancet, 243(6284), 171.
10.1016/S0140-6736(00)42998-3 Google Scholar
- Figuié, M. (2013). Global health risks and cosmopolitisation: from emergence to interference. Sociology of Health & Illness, 35(2), 227–240.
- Frederiksen, K., Lomborg, K., & Beedholm K. (2015). Foucault’s notion of problematisation: A methodological discussion of the application of Foucault’s later work to nursing research. Nursing Inquiry, 22(3), 202–209.
- Hadjiminas, M. (2008). Cyprus and thalassaemia. Nicosia: J.G. Casoulides and Son.
- Jensen, C. B. (2008). Sociology, systems and (patient) safety: Knowledge translations in healthcare policy. Sociology of Health & Illness, 30(2), 309–324.
- Kattamis, C., Haidas, S., Metaxotou-Mavromati, A., & Matsaniotis, N. (1972). Beta-thalassaemia, G-6-PD deficiency, and atypical cholinesterase in Cyprus. British Medical Journal, 19(3), 470–471.
10.1136/bmj.3.5824.470-b Google Scholar
- Kenny, K. (2015). The biopolitics of global health: Life and death in neoliberal time. Journal of Sociology, 51(1), 9–27.
- Kyriakides, T. (2016). Tactics as empirical and conceptual objects: Patient activism and the politics of thalassaemia in Cyprus. Engaging Science, Technology, and Society, 2, 13–32.
- Kyriakides, T. (2018a). Directing the future of gene therapy in Cyprus: Breakthroughs, subjunctivities and the pragmatics of narrative. Cultural Anthropology, 33(4), 680–704.
- Kyriakides, T. (2018b). Tactics of association. Social Anthropology, 26(4), 471–486.
- Latour, B. (2003). What if we talked politics a little? Contemporary Political Theory, 2(2), 134–164.
10.1057/palgrave.cpt.9300092 Google Scholar
- Loizos, P. (1975). Changes in property transfer amongst Greek Cypriot villagers. Man, New Series, 10(4), 503–523.
- Mol, A. (2002). The body multiple: Ontology in medical practice. Durham: Duke University Press.
- Mol, A., & Law, J. (1994). Regions, networks and fluids: Anaemia and social topology. Social Studies of Science, 24(4), 641–671.
- Moreira, T. (2011). Health care rationing in an age of uncertainty: A conceptual model. Social Science & Medicine, 72, 1333–1341.
- Nader, L. (1969). Up the anthropologist: Perspectives gained from studying up. In D. Hymes (ed) Reinventing anthropology. New York, NY: Pantheon Books. pp. 285–311.
- Paris, P. (1961). The impartial knife: A doctor in Cyprus. New York: David McKay Company.
- Pellizzoni, L. (2012). Strong will in a messy world. Ethics and the government of technoscience. Nanoethics, 6(3), 257–272.
- Petrou, P. (2015). Crisis as a serendipity for change in Cyprus’ healthcare services. Journal of Medical Economics, 18(10), 805–807.
- Pignarre, P., & Stengers, I. (2011). Capitalist sorcery: Breaking the Spell, edited and translated by Andrew Goffey. Hampshire and New York: Palgrave Macmillan.
- Plato, C. C., Rucknagel, D. L., & Gershowitz, H. (1964). Studies on the distribution of glucose-6-phosphate dehydrogenase deficiency, thalassemia, and other genetic traits in the coastal and mountain villages of Cyprus. American Journal of Human Genetics, 16(3), 267–283.
- Prigogine, I., & Stengers, I. (1984). Order out of chaos. Tssoronto and New York: Bantam Books.
- Puig de la Bellacasa, M. (2012). ‘Nothing comes without its world’: Thinking with care. The Sociological Review, 60(2), 197–216.
- Raz, A. (2009). Eugenic utopias/dystopias, reprogenetics, and community genetics. Sociology of Health & Illness, 31(4), 602–616.
- Raz, A., & Vizner Y. (2008). Carrier matching and collective socialization in community genetics: Dor Yeshorim and the reinforcement of stigma. Social Science & Medicine, 67(9), 1361–1369.
- Sant Cassia, P. (1982). Property in Greek Cypriot marriage strategies. Man, New Series, 17(4), 643–663.
- Shelley, H., & Mehmed A. (1949). Anopheles eradication in Cyprus. British Medical Journal, 1, 767–768.
- Sleeboom-Faulkner, M. (2011). Genetic testing, governance, and the family in the People’s Republic of China. Social Science and Medicine, 72(11), 1802–1809.
- Savransky, M. (2018). The humor of the problematic: Thinking with Stengers. SubStance, 47(1), 29–46.
- Stengers, I. (2011). ‘ Another Science is Possible!’ A Plea for Slow Science. Brussels: Université Libre de Brussels. Available at http://threerottenpotatoes.files.wordpress.com/2011/06/stengers2011_pleaslowscience.pdf
- Stengers, I. (2018). Another science is possible: A manifesto for slow science. Cambridge: Polity Press.
- Turnbull, D. (2004). Genetic mapping: Approaches to the spatial topography of genetics. In H.J. Rheinberger and J.P. Gaudillière (eds) Classical Genetic Research and its Legacy: The Mapping Cultures of Twentieth-century Genetics. London and New York: Routledge. pp. 207–219.